Hygiene

Hygiene

Hygiene is essential for the physical health and well-being of the baby. By ensuring your own hands are carefully disinfected, you significantly decrease the chance of introducing harmful bacteria into your child’s skin. Please remember that the skin is the largest organ of the body, and one of its purposes is to protect the body from infection causing bacteria. EB compromises this first line of defense and therefore it is your responsibility as a parents/caregiver to keep your hands and surroundings clean. 

Follow the instruction below: 

  • Wet your hands and apply liberal anti-bacterial wash or soap.
  • Rub both your hands interlocking with each other and rub the back of your fingers and their tips. Then rinse both hands with clean water.
  • Always wash hands before and after showering/bathing, wound care, removing/changing and applying bandages and cleaning the diaper area.
  • Make sure to regularly change your child’s bedsheets
  • Use cooling pillows instead of regular pillows.
  • Disinfect the room on a daily basis.
  • Always sterilize your child’s feeder and utensils.
  • Clean and disinfect the room in the absence of the child.
  • Make sure the room is adequately ventilated.
  • Keep your child away from dust.
Hygiene

Instruction for Patients

Clean Water

  • Make sure the water is clean and safe for bathing and drinking. If you do not have access to clean water, follow our instructions on making your water safe.
  • Clean tap water and shower head.
  • Use filtered, bottled, or boiled water for drinking purpose.
  • Do not use rivers, lakes and dirty tap water, or another source even if it looks clean
  • If you do not have access to safe water or want to use rivers, lakes, and tap water, follow the instructions above.
  • Bring the water to a rolling boil for 3 minutes and cool down before drinking and bathing. Boil for 3 minutes. Don’t use ice for cooling. Cool down water completely.

Salt Bath

Salt baths can help reduce both pain and inflammation.

  • Add 15 liters of clean lukewarm water
  • Add six tablespoons of salt (135 g)
  • Mix well
  • Check temperature is lukewarm (not too hot or cold)
  • Pat dry with a clean towel.
  • Mark the bathtub with the marker for accuracy and to save time.
  • Mark the cup with the marker for accuracy and to save time.

Important

  • Bandages may be more comfortable to remove in the bath.
  • Line clean towel(s) at the bottom and sides of the tub to avoid slipping when sitting in the bath.
  • Avoid direct contact with water. Use sponge or soft cloth for this purpose.
  • Make sure the room is well ventilated.
  • Bathing can be daily or every other day

Bleach Day

Bleach baths can help reduce and prevent infections

  • Add 15 liters of clean lukewarm water
  • Add 30 ml of regular bleach (2.1%). To measure, use a single-use disposable syringe
  • Mix well
  • Check temperature (lukewarm)
  • Pat dry with a clean towel. Use dry towel
  • Mark the bathtub with the marker for accuracy and to save time
  • Mark the cup with the marker for accuracy and to save time

Important

  • Bath 2 times a week (maximum)
  • Make sure the room is well ventilated
  • Do not give bleach baths to babies under one-year-old
  • Do not drink! Keep away from children!
  • Avoid contact with eyes

Neem Bath

Neem bath can help reduce blisters and prevent infections. Boil 15 liters’ water with a bunch of neem leaves for 10 minutes. Let it cool at the room temperature and then use for shower.