EB Care Tips

Debra Pakistan / EB Care Tips

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Daily Living

Our Recommendations for Daily Living address a variety of topics, such as adaptive equipment, shoe suggestions, scooter options, and more. 

Occupational & Physical Therapy

Occupational and Physical Therapy can assist you or your loved one when there are concerns regarding motion, strength, or loss of function. We provide information on the differences between the two practices and the support they offer.

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For those with EB, proper nutrition is vital for adequate growth and development, wound healing, immune system function, and more. Colleen Vicente, a Registered Dietitian at Children’s Hospital of Philadelphia, offers strategies for managing nutrition in children and adults with EB.

Eye Care

The eyes are an area that are prone to having issues for people with EB. Pediatric Ophthalmologist, Vicki M. Chen, MD, offers strategies on how to prevent blistering, scarring, and vision loss.


Read Commonly Asked Questions about EB care received by our EB Nurse Educator. Topics include braces, tattoos, breastfeeding, and more.