A newborn with EB, or any suspicion of having the condition needs intensive care that extends beyond primary child care such as food, shelter and a stimulating environment. If unsure, please consult your doctor to conduct relevant tests and examine your child for and accurate diagnosis, and follow his instructions.
Child Care Tips
- Avoid lifting and frequently touching babies.
- Wash your hands before lifting or touching the baby.
- Place a pillow or sheepskin beneath the baby to avoid friction and blister formation.
- Wear loose-fitting cool clothes, and avoid rough and adhesive fabrics.
- It is best to change dressings daily of a newborn child.
- DO NOT remove dressings stuck to the skin. Soak them in paraffin before removing.
- Cleanse skin daily with a mild soap.
- In the case of lesions and wounds, contact your doctor before applying any antibiotic cream or ointment.
- Keep the temperature of the baby’s room maintained. Avoid overheating roomsin order to maintain body temperature.
- Lubricate the skin of the baby.
- Lance the blisters (See wound management).
- Maintain growth chart of your baby
- Take care of your child’s nutrition (See Nutrition Chapter).