DEBRA Pakistan is a national charitable organisation that assists and facilitates the physical, psychological and emotional health and well being of those living with the rare and currently incurable genetic skin condition, Epidermolysis Bullosa (EB). This skin disorder causes blistering and wounding of the mucous membranes, where fragility of skin is characteristic of all subtypes. At Debra Pakistan, we aspire to guide and connect EB sufferers and their families to the appropriate care and psychosocial support, that is desperately needed in this often isolating condition.
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At Debra Pakistan, we are passionate about providing care and support to improve the quality of life of individuals and families living with EB.
To achieve this, we have created a first of its kind database in Pakistan, where we remain in consistent contact with patients and their families, and direct them to the appropriate medical care and treatment through our burgeoning medical network.
We are dedicated to ensuring easy access to high quality and safe medical care and treatment for EB patients, whilst simultaneously driving and supporting advanced research efforts for adequate care and treatment of this condition.
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“Paving the path for a painless future,” is an inscription scribed into our hearts, and defines our vision – where one day, no one in the world has to live with the painful genetic skin condition EB.